Condition specific

Understanding and Responding to the Needs of Carers of People with Dementia in the UK, US and Beyond

This research compares the different approaches to supporting carers of people with dementia across the UK, US and beyond.  Carried out by the University of Birmingham, this work explores the role and experience of carers in different national contexts, highlighting good practice examples and making policy and practice recommendations.  Unsurprisingly perhaps, the report highlights just how much we have in common with other countries in trying to make available effective, personalised supports against a backdrop of increased demand and diminishing resource.  Interestingly, the report explor

The Outdoors - A Natural Place for Young People with Autism, End of Project Report

This End of Project Report describes an innovative Transition to Work Programme for young people with autistic spectrum diagnoses and is the result of a pilot programme developed by Lothian Autistic Society (LAS) and Scottish Outdoor Education Centres (SOEC) and made possible through funding from Scottish Natural Heritage (SNH). The pilot had the twin aims of developing employability skills and exploring the therapeutic value of the outdoors. 

More than a break

The purpose of this discussion paper is to set out some of the key issues related to the experience of disabled children and their families in being able to access suitable short break and respite care support, and their experience of services received. The paper is intended as a starting point to stimulate a wider discussion amongst service users, carers, providers, planners and others to determine the main priorities for improving provision and achieving better outcomes for all concerned.

Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities

Paper from the Journal of Applied Research in Intellectual Disabilities 2010, 23, 85–9. This study highlights some of the complexities in reducing inequalities in the provision of respite services and in identifying the need for them.

Working outside the box: An evaluation of short breaks and intensive support services to families and disabled young people whose behaviour is severely challenging. Summary report

The summary report brings together the main findings from the evaluation undertaken of three Action for Children services in Cardiff, Glasgow and Edinburgh. These provide specialist short breaks and intensive support services to families and young people with developmental disabilities and whose behaviour is severely challenging. This summary report describes the aims of the evaluation and the methodologies used.