This research briefing is about the care provided in care homes to people with dementia in the period leading up to the end of their lives. It aims to provide an overview of a range of issues important to care home residents, carers and providers. Research briefing published by the Social Care Institute for Excellence (SCIE) in May 2012. Review date is May 2015.
Report that considers, albeit briefly, how or whether the Big Society can deliver care for older people with dementia, given the enormous strain that dementia is placing on traditionally designed public services.
Report from a half-day seminar on 7 February 2012, organised by the Social Care Institute for Excellence (SCIE), ARUP and the Thomas Pocklington Trust.
N.B. Free download requires registration.
This paper explores the views and experiences of people living with dementia. It is based on discussions with members of the Scottish Dementia Working Group (SDWG) over the past ten years.
Contributors talk about:
Resources for those who work with people at the end of life and their families.
This learning activity is Social Care Institute for Excellence (SCIE) e-learning resource. The Open Dementia elearning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with dementia. This programme is designed to be accessible to a wide audience and to make learning as enjoyable as possible and so allows users to fully interact with the content and includes video, audio and graphics to make the content come alive. Resource published 2009.
Resource containing videos on the subject of dementia, including best practice, staff training, support for older people and the importance of dementia research.
The Dementia Services Development Centre is recognised as a model for converting world-leading dementia research into everyday good practice in caring for people with dementia.
Leading for Outcomes is a series of guides that provide support and training materials to help lead the social services workforce to focus on the outcomes important to people.
Film that illustrates the steps involved in supporting a person with dementia to die well, through the experience of Mairead Smart and her family. It is crucial to recognise when a person with dementia enters the final weeks and days of their life and to respond with support that avoids unnecessary interventions and reflects the wishes of the individual and their family.
Film that introduces Ian Grant and Sandy Reed, who were both diagnosed with dementia in their 50’s. They describe their experiences of receiving such a diagnosis at an early age, and the lack of support that often follows.
They are both now supported by the Forget Me Not Centre, which provides counselling and support to younger people with dementia and takes a reablement approach. This means that the support staff work alongside the individuals, help to break difficult tasks down into small steps, and encourage frequent practice until confidence in their abilities grows.