dementia

Resource to provide overarching guidance and direction for those in charge of Change Fund implementation and who desire a better grounding in the subject areas below.

This learning activity is Social Care Institute for Excellence (SCIE) e-learning resource. The Open Dementia elearning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with dementia. This programme is designed to be accessible to a wide audience and to make learning as enjoyable as possible and so allows users to fully interact with the content and includes video, audio and graphics to make the content come alive. Resource published 2009.

Resource containing videos on the subject of dementia, including best practice, staff training, support for older people and the importance of dementia research.

The Dementia Services Development Centre is recognised as a model for converting world-leading dementia research into everyday good practice in caring for people with dementia.

Film that illustrates the steps involved in supporting a person with dementia to die well, through the experience of Mairead Smart and her family. It is crucial to recognise when a person with dementia enters the final weeks and days of their life and to respond with support that avoids unnecessary interventions and reflects the wishes of the individual and their family.

Film that introduces Ian Grant and Sandy Reed, who were both diagnosed with dementia in their 50’s. They describe their experiences of receiving such a diagnosis at an early age, and the lack of support that often follows.

They are both now supported by the Forget Me Not Centre, which provides counselling and support to younger people with dementia and takes a reablement approach. This means that the support staff work alongside the individuals, help to break difficult tasks down into small steps, and encourage frequent practice until confidence in their abilities grows.

Statistics publication from Alzheimer's Scotland on the number of people with dementia in Scotland.

Briefing which discusses the barriers currently faced by BME people in accessing dementia care services and some of the ways in which services can become better at responding to the needs of BME people in their locality.

Early intervention is often seen as anticipatory information and support delivered at the earliest stage of dementia, following diagnosis.

Prevention encompasses the range of interventions that prevent an increase in need that may tip an individual into a higher or more intensive level of service.

This SCIE resource explains this further and offers a greater understanding of the journey through dementia.

For more examples of Citizen Leadership, see the Gallery of Good Practice Examples in Citizen Leadership.

The Scottish Dementia Working Group (SDWG) is an independent group that was set up by people with dementia. We are a friendly group run by, and for, people with dementia or a related condition. We meet to support each other and find ways to improve services and attitudes.
(Photo 1) The Working Group campaigns to improve services for people with dementia and to improve attitudes towards people with dementia.
We do lots of things to improve services. We participate in forums, committees and conferences to change policy. We campaign to make dementia a high priority.