The 10th international short break conference took place in Edinburgh from 13 to 15 September 2016. This conference report explores the barriers experienced in accessing short breaks and how these have been overcome.
Evidence of impact of short breaks (respite care)
ARCH, the National Respite Network and Resource Center in the United States of America identified that evidence-based research on respite care has, to large extent, been lacking.
As part of the implementation of the Equal Partners in Care (EPiC) Highland Carer’s Strategy 2014-2017 it was agreed to undertake a review of respite for Adult Carers of Adults (aged 16+). Independent consultants were commissioned by NHS Highland through Connecting Carers to undertake this work.
There are four groups of people – totalling an estimated 200 people - with whom conversations have taken place during the review:
Carers and staff from carer support organisations – more than 75 carers have given their views;
The Better Breaks funding programme is focused on improving the range and availability of short break opportunities for disabled children and young people, particularly those with multiple support needs, including short break opportunities that families can enjoy together, or which allow parents and siblings to have time away from their caring responsibilities.
This is the summary report.
This evaluation report is based on feedback from people living with dementia and carers who received an Individual Award from the Life Changes Trust. The Individual Awards Pilot Scheme was run in Argyll & Bute and Edinburgh in 2014-15 and aimed to provide a small amount of additional financial empowerment to a number of individuals whose lives have been affected by dementia, to help improve their well-being and quality of life.
Dundee Carers Centre commissioned Animate to carry out research into the current and future provision of Short Breaks/Respite for adults in Dundee, on behalf of the Dundee Partnership. The main purpose of the research was to help local service planners improve Short Break provision in line with the overall principles of the Scottish Government’s policy intentions: protecting young carers, enabling self - care and working with adult carers as partners in care, by:
• improving planning of Short Break services
Report by the Muscular Dystrophy Campaign into the lack of age appropriate short breaks (respite care) provision for disabled young adults with Duchenne muscular dystrophy and other neuromuscular and long-term conditions.
The Time to Live strand is part of the Creative Breaks programme and awards grants directly to individual carers so that they can arrange and pay for the short break that suits them best. In 2011 the Time to Live strand was piloted with 12 organisations who offer support to carers based upon geographical boundaries. In 2012 the application was extended to include organisations with a national, condition specific focus. This evaluation examines the projects running from October 2012 through to September 2013.
In 2012 Natural England commissioned Dementia Adventure (a Community Interest Company which connects people living with dementia, with nature and a sense of adventure) to review the existing evidence of the benefits and barriers facing people living with dementia in accessing the natural environment and their local green space.
The Better Breaks programme awarded its first grants in March 2012. 51 grants, totalling £1,121,602 were distributed to projects across Scotland so that these projects could deliver quality short breaks for children and young people with disabilities which would be tailored to their needs whilst giving their families a break from caring.
The evaluation was based on information provided by the funded projects through their applications, their End of Grant reports, any supporting materials provided, selected telephone calls and review of the Shared Stories films.