health and social care

A review of respite / short break provision for adult carers of adults in the Highland Partnership area

As part of the implementation of the Equal Partners in Care (EPiC) Highland Carer’s Strategy 2014-2017 it was agreed to undertake a review of respite for Adult Carers of Adults (aged 16+). Independent consultants were commissioned by NHS Highland through Connecting Carers to undertake this work.
There are four groups of people – totalling an estimated 200 people - with whom conversations have taken place during the review:
Carers and staff from carer support organisations – more than 75 carers have given their views;

What helps women who have learning disabilities get checked for cervical cancer?

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care in Scotland.

This paper was written by Elaine Monteith from ENABLE Scotland who participated in the PROP2 programme.

Storyworks

Storyworks gathers and presents personal stories around a range of topics. It works with artists, health professionals, researchers, charities, patients, and theatre companies. Its projects have taken them around the world; from living rooms and hospital wards to music festivals and prison cells.

Care Opinion

An independent site where anyone can share their stories of adult social care or the NHS. The site covers adult social services (as well as NHS services) in England, giving service users, their families and carers the opportunity to publish their personal experiences, good or bad, of the care system.

Personal stories

A series of written stories that illustrate how the divide between health and social care affects people's lives. They have been included in the Commission on the Future of Health and Social Care call for evidence.

The Waiting Room: storytelling project

A location-based (US) social media and community engagement initiative that aims to improve the patient experience through the collection and sharing of digital content. This cultural data - video, data visualisations, photographs and text - is collected in the waiting room by creating frameworks for sharing that range from anonymous expressions of feeling to deeper storytelling.

The primary aim of the resource is to uncover the needs of underserved patients at a moment when the role of the 'safety net' is being debated both in America and abroad.

Patient Voices

Patient Voices digital stories use video, audio, still images and music to convey patients', carers', practitioners' and managers' own stories in a unique way. They are intended to touch the hearts of managers, clinicians and others striving to improve the quality of health and social care. Workshops are increasingly being used to engage with, and evidence outputs from, the Patient and Public Involvement (PPI) and patient engagement agendas, together with being used to provide qualitative evidence of the patient experience.

Care story library

The stories in this library highlight the impact that health and social care services have on the quality of life of people who use these services and their carers. They were created as part of a digital storytelling project that is being taken forward by the Joint Improvement Team (JIT) and NHS Scotland Information Services Division.