No one would argue that unpaid family carers should not be equal partners in care, as their care constitutes over 50% of all care provided in every local authority and NHS region of Scotland. Consistent and meaningful carer engagement must therefore be at the heart of all good health and social care policy. But a great gulf remains between good intentions and good practice. The Coalition of Carers in Scotland is pleased to o!er the carer engagement standards in this document as a bridge to help planning o"cers and commissioners of services move from good intentions to better practice.
This study examines the experiences of older people with high support needs involved in support based on mutuality and reciprocity. It shares the benefits and outcomes achieved for individuals, families, communities and organisations funding and providing this support. The findings are relevant to the future funding and delivery of long-term care, and the transformation of local services. The report highlights how:
The overall aim of our inquiry was to examine respite provision in Clackmannanshire for carers of adults with learning disabilities living in the family home and to look at examples of good practice in other areas. For the purpose of our study we defined respite care as short-term care that helps a family take a break from the daily routine and stress. It can be provided in the family home or in a variety of out-of-home settings and involve either time apart or time together with extra support.
This pilot project was set up by Falkirk Council to determine whether the use of vouchers for short breaks could help to address the low uptake of short breaks among people with severe and enduring mental illness and their carers, and also to provide an alternative to Direct Payments. The project was developed in response to:
This report presents the findings of research carried out by ENABLE Scotland between April 2011 and April 2012 with the aim of improving knowledge and understanding of emergency planning for carers in Scotland, particularly within the wider context of Carer’s Assessments.
The report has two main objectives:
1. To establish the provision of support to carers with emergency planning across all local authority areas, highlighting examples of good practice and producing recommendations based on the findings.
2. To explore the role of sibling carers.
This report describes the findings of research carried out between August and December 2011 into the experiences of unpaid carers in accessing and using short breaks (respite care). The study explored, from the carers’ perspective the benefits of short breaks (provided by formal services and family and friends), good practice in planning and provision, deficits and areas for improvement. Research findings are based on 1210 responses to a Scotland-wide survey distributed through carer organisations, four focus groups involving 36 carers and 13 interviews.
The main purpose of this report is to inform the work of Scotland‟s Commissioner for Children and Young People over the next four years, specifically in relation to disabled children and young people whom he has already identified as a priority group.
The aims are:
1. To identify and review the major social research studies about disabled children and young people in Scotland published since devolution (1999), looking at issues which can be a barrier to their inclusion in society.
The Short Breaks Fund was launched in November 2010 and has been made available through funding from the Scottish Government in recognition of the important contribution which carers make in caring for a loved one, and the vital role breaks play in sustaining carers and those they care for.
With a foreword by Minister for Public Health Michael Matheson this report considers what projects from the first round of funding have achieved, and captures their challenges and from this to considers what learning can be taken forward into future funding allocations.
Shared Care Scotland exists to promote the development of more imaginative, personcentred approaches to short breaks and respite care. The carers and service users we speak to are looking for quality services which offer choice, flexibility and reliability; a range of services that meet different needs and circumstances rather than a ‘one size fits all’ approach. The development of Short Break Bureaux in Scotland, involves collaborative working between the statutory and voluntary sector. This guide provides a model of service planning.
The purpose of this discussion paper is to set out some of the key issues related to the experience of disabled children and their families in being able to access suitable short break and respite care support, and their experience of services received. The paper is intended as a starting point to stimulate a wider discussion amongst service users, carers, providers, planners and others to determine the main priorities for improving provision and achieving better outcomes for all concerned.