carers

SCIE report 42: ‘we are more than our story’: service user and carer participation in social work education

This report draws on the views of service users and carers from the Social Work Education Participation (SWEP) website steering group and members of the General Social Care Council (GSCC) Visitors group who inspect social work programmes with GSCC inspectors. Report published by the Social Care Institute for Excellence (SCIE) in July 2011. Review date is July 2014.

SCIE report 15: using digital media to access information and good practice for paid carers of older people: a feasibility study

This report describes a study commissioned by SCIE and jointly funded with the National Knowledge Service. It was carried out by the University of Brighton to explore the feasibility and the appropriateness of digital technologies to support the work of paid carers in residential care homes for older people. Report published by the Social Care Institute for Excellence (SCIE) in September 2006.

SCIE position paper 09: developing measures for effective service user and carer participation

This paper presents the process and outcomes of research in to service user and carer participation in developing social care services. This research was charged not with evaluating the impact of participation, but with scoping what is know about it and how evaluations are being conducted. Briefing paper published by Social Care Institute for Excellence (SCIE) in June 2007.

SCIE position paper 05: working together: carer participation in England, Wales and Northern Ireland

The paper aims to identify what is happening in the social care sector with the involvement of carers and the impact participation has had on service improvement. It complements Position paper 3: Has service user involvement made a difference to social care services? The position paper is intended to help social services providers to work better with carers to develop social care services. Position paper published by Social Care Institute for Excellence (SCIE) in June 2006.

Adults’ services: SCIE guide 9 : implementing the carers (equal opportunities) act 2004

This guide is one of a series published by the Social Care Institute for Excellence (SCIE). SCIE guides are one-stop shops for social care practitioners, presenting key findings, current legislation and examples of what is working well to guide and inform practice. First published in Great Britain in October 2005 by the Social Care Institute for Excellence; updated in August 2007

The future for personalisation? Service users, carers and digital engagement

Study that examines the relevance of social media to the development of personalised social care in general, and to self-directed support in particular.

The focus of the report is the UK but, given the global nature of web-based communication, it does include some international initiatives.

Caring for our future: shared ambitions for care and support

Leaflet that explains how people can get involved in the 'Caring for our future': shared ambitions for care and support' engagement.

Supporting carers: the case for change

Report that provides evidence from randomised controlled trials (RCTs) and peer reviewed journals to show that increasing support for carers: improves health and wellbeing outcomes for patients and recipients of care; improves health and wellbeing outcomes for carers, who suffer disproportionately high levels of ill-health; reduces unwanted admissions, readmissions and delayed discharges in hospital settings; and reduces unwanted residential care admissions and length of stays.

Always on call, always concerned : a survey of the experiences of older carers

Survey published by The Princess Royal Trust for Carers in 2011. Of the UK‟s approximately six million carers, around half are aged over 50. A recent survey of carers in England showed that people near or over retirement age undertake a high proportion of caring.

Personal health budgets: the views of service users and carers

Report that presents the views of mental health service users and carers about personal health budgets. It is based on research undertaken with 162 service users and carers who took part in the study – 58 by participating in focus groups and 104 by responding to an online survey.