dementia

Improving personal budgets for older people: a review

Approaches to making personal budgets work well for older people (including people with dementia) emerged as a high priority and TLAP has committed to do more work in this area.

This report is a first stage. It draws on two key surveys:
1. The ADASS personalisation survey (2012)
2. The TLAP National Personal Budgets Survey (2011) and a review of relevant literature.

Using ICT in activities for people with dementia

This is a short introduction to using information and communication technology (ICT) in activities for people with dementia. It is aimed at managers and staff in the care sector, and those who organise activities for people with dementia. It's a plain language guide about using mainstream technologies - you don't need to be technically minded.

Stronger collective voice for people with dementia

A growing number of people with dementia in the UK are becoming actively involved in groups to try to influence services and policies affecting people with dementia. The Dementia Engagement & Empowerment Project (DEEP) was a one-year investigation aiming to highlight groups and projects involving people with dementia. The report offers specific ways forward for organisations wishing to engage with people with dementia. Resource published by the Joseph Rowntree Foundation in October 2012. Summary and full report available.

Creating a dementia-friendly York

This report considers how York can become a more dementia-friendly city. While York is responding positively in many ways to the needs of people with dementia, there is still much to do to make sure that people can live well with dementia.

Dementia: autonomy and decision-making. Putting principles into practice. Research summary and recommendations for policy and practice

This project drew on the experiences of over 100 carers (family members, partners, friends, volunteers) who have taken on the role of proxy decision-maker for someone with dementia.
I wish to thank them all for their invaluable contributions to informing both the practical guide to making decisions and this report.

Dementia: making decisions - a practical guide for family members, partners and friends with power of attorney, guardianship or deputyship

This guide provides practical advice and information on how to weigh-up information and options for action when faced with situations in which major decisions need to be made. This guide was informed by a study of over 100 carers with proxy decision-making powers, funded by the Nuffield Foundation.

Dementia Now

A free, downloadable e-journal, containing research information, web links, news stories, resources and updates to the Dementia Centre's library. Each issue tackles a different hot topic relating to dementia care.

At a glance 59: end of life care for people with dementia living in care homes

This At a glance briefing summarises the research briefing End of life care for people with dementia living in care homes (SCIE 2012). Research briefings provide a concise, narrative summary of the research knowledge on a particular topic and signpost routes to further information. This briefing was published by Social Care Institute for Excellence (SCIE) and it has been co-produced with the National End of Life Care programme.

SCIE research briefing 40: end of life care for people with dementia living in care homes

This research briefing is about the care provided in care homes to people with dementia in the period leading up to the end of their lives. It aims to provide an overview of a range of issues important to care home residents, carers and providers. Research briefing published by the Social Care Institute for Excellence (SCIE) in May 2012. Review date is May 2015.

Long term care for older people, social productivity and the 'big society': the case of dementia

Report that considers, albeit briefly, how or whether the Big Society can deliver care for older people with dementia, given the enormous strain that dementia is placing on traditionally designed public services.