Alzheimers disease

Perspectives on personal outcomes of early stage support for people with dementia and their carers

One of a series of reports which forms part of the PROP Practitioner Research Programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care for older people.

Building dementia-friendly communities: a priority for everyone

Report that provides evidence on dementia-friendly communities from the perspective of people affected by dementia and their carers. It explores the barriers that people face in their community, how they would like to be engaged with their local area and the support they need to do so.

It also collates existing evidence and describes projects that are already making a difference for people with dementia. This information is used both to provide a definition of a dementia-friendly community, and to lay out 10 areas of focus for communities working to become dementia friendly.

Low expectations: attitudes on choice, care and community for people with dementia in care homes

Report that provides new evidence on the key issues affecting people with dementia living in care homes. The report summarises evidence from surveys of family members, care home staff and people with dementia about their views on care in care homes.

Dementia: autonomy and decision-making. Putting principles into practice. Research summary and recommendations for policy and practice

This project drew on the experiences of over 100 carers (family members, partners, friends, volunteers) who have taken on the role of proxy decision-maker for someone with dementia.
I wish to thank them all for their invaluable contributions to informing both the practical guide to making decisions and this report.

Dementia: making decisions - a practical guide for family members, partners and friends with power of attorney, guardianship or deputyship

This guide provides practical advice and information on how to weigh-up information and options for action when faced with situations in which major decisions need to be made. This guide was informed by a study of over 100 carers with proxy decision-making powers, funded by the Nuffield Foundation.

Dementia Now

A free, downloadable e-journal, containing research information, web links, news stories, resources and updates to the Dementia Centre's library. Each issue tackles a different hot topic relating to dementia care.

Number of people with dementia in Scotland 2011

Statistics publication from Alzheimer's Scotland on the number of people with dementia in Scotland.

Alzheimer Scotland: policy reports

Resource that provides a list of policy reports on the subject of dementia in Scotland.

BBC Radio 4: You and Yours. Cliff Richard's Cafe [dealing with dementia]

A year after his mother died of dementia, Sir Cliff Richard talks to BBC Radio 4 programme You and Yours. about the challenges of dealing with his mother's dementia.