Alzheimers disease

This guide provides practical advice and information on how to weigh-up information and options for action when faced with situations in which major decisions need to be made. This guide was informed by a study of over 100 carers with proxy decision-making powers, funded by the Nuffield Foundation.

One of a series of reports which forms part of the PROP Practitioner Research Programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care for older people.

Report inspired by a number of projects conducted on dementia in partnership with Red and Yellow Care. The studies include over 200 hours of ethnographic observation in care homes and with individuals living at home. The views of more than 80 people with dementia, 50 carers and numerous frontline practitioners working in different clinical, careor support roles both in and beyond dementia care settings, are taken into account.

An inititative that encourages families to create a playlist of personally meaningful music on an iPod for their loved one. Features stories from families and individuals involved in the programme.

For more story-based resources, see the Storybank.

Stories of those affected by dementia, including people with dementia, carers and relatives.

For more story-based resources, see the Storybank.

Carers' personal stories of caring for people with dementia.

For more story-based resources, see the Storybank.

Soon after retiring in 1990, GP Joe McShane found out that his wife Ethna had developed Alzheimer's disease. Joe cared for Ethna for six years until a fall led to her being admitted to the Wythenshawe Hospital in Manchester. He tells the story.

Report that captures a woman's journey as carer for her husband suffering with vascular dementia.