Terminally ill people and their families were placed at the heart of the development and design of the research in order to:
Research that highlights the following key messages:
Study that explores the views of older adults who are receiving health and social care at the end of their lives, on how services should be funded, and describes their health-related expenditure.
Report based on qualitative research, funded by Marie Curie Cancer Care, undertaken by the Health Experiences Research Group in the Department of PrimaryHealth Care Sciences at the University of Oxford. 40 carers were interviewed about their experiences of caring for someone at the end of life. Some were currently caring for a sick friend or relative; others had been bereaved
Resources for those who work with people at the end of life and their families.
Briefing developed by EDCM, with the support of The Children’s Trust, Tadworth to: focus attention on disabled children, young people and their families at a time of whole system change; ensure that the voice of patients is heard; make sure that the modernised NHS delivers better services for disabled children, particularly those with complex and/or palliative care needs.
This literature review examines the evidence relating to people with dementia living in extra care housing, commissioned by the Housing and Dementia Research Consortium (HDRC) in November 2008. Key aims were to identify recent literature with a focus on evidence relating to the following: design and use of the built environment; facilities, furnishings and equipment; care, support and therapeutic services; organisation and management; outcomes in relation to health, wellbeing, policy and cost.
Document outlining an action plan for palliative and end of life care in Scotland aimed at developing a single, comprehensive approach to the provision of palliative care in Scotland.
Document explaining the End of Life Care Strategy for England which aims to improve the provision of care for all adults at the end of life, as well as their families and carers.
Document detailing competences and principles applicable to all workers involved in caring for and supporting people at the end of life regardless of whether their role is healthcare related or social care related. These competences and principles are intended to support workforce development.