palliative care

One chance to get it right: improving people's experience of care in the last few days and hours of life

Document that sets out the approach to caring for dying people that health and care organisations and staff caring for dying people in England should adopt in future.

Difficult conversations with dying people and their families

Terminally ill people and their families were placed at the heart of the development and design of the research in order to:

Ways and means

Research that highlights the following key messages:

Funding health and social services for older people: a qualitative study of care recipients in the last year of life

Study that explores the views of older adults who are receiving health and social care at the end of their lives, on how services should be funded, and describes their health-related expenditure.

Committed to carers: supporting carers of people at the end of life

Report based on qualitative research, funded by Marie Curie Cancer Care, undertaken by the Health Experiences Research Group in the Department of PrimaryHealth Care Sciences at the University of Oxford. 40 carers were interviewed about their experiences of caring for someone at the end of life. Some were currently caring for a sick friend or relative; others had been bereaved

Disabled children and health reform: questions, challenges and opportunities

Briefing developed by EDCM, with the support of The Children’s Trust, Tadworth to: focus attention on disabled children, young people and their families at a time of whole system change; ensure that the voice of patients is heard; make sure that the modernised NHS delivers better services for disabled children, particularly those with complex and/or palliative care needs.

'Extra care' housing and people with dementia: a scoping review of the literature 1998-2008

This literature review examines the evidence relating to people with dementia living in extra care housing, commissioned by the Housing and Dementia Research Consortium (HDRC) in November 2008. Key aims were to identify recent literature with a focus on evidence relating to the following: design and use of the built environment; facilities, furnishings and equipment; care, support and therapeutic services; organisation and management; outcomes in relation to health, wellbeing, policy and cost.

Living and dying well : a national action plan for palliative and end of life care in Scotland

Document outlining an action plan for palliative and end of life care in Scotland aimed at developing a single, comprehensive approach to the provision of palliative care in Scotland.

End of Life Care Strategy : promoting high quality care for all adults at the end of life

Document explaining the End of Life Care Strategy for England which aims to improve the provision of care for all adults at the end of life, as well as their families and carers.