end of life care
Terminally ill people and their families were placed at the heart of the development and design of the research in order to:
Research that highlights the following key messages:
This At a glance briefing summarises the research briefing End of life care for people with dementia living in care homes (SCIE 2012). Research briefings provide a concise, narrative summary of the research knowledge on a particular topic and signpost routes to further information. This briefing was published by Social Care Institute for Excellence (SCIE) and it has been co-produced with the National End of Life Care programme.
This research briefing is about the care provided in care homes to people with dementia in the period leading up to the end of their lives. It aims to provide an overview of a range of issues important to care home residents, carers and providers. Research briefing published by the Social Care Institute for Excellence (SCIE) in May 2012. Review date is May 2015.
Study that explores the views of older adults who are receiving health and social care at the end of their lives, on how services should be funded, and describes their health-related expenditure.
Report from a half-day seminar on 7 February 2012, organised by the Social Care Institute for Excellence (SCIE), ARUP and the Thomas Pocklington Trust.
Report based on qualitative research, funded by Marie Curie Cancer Care, undertaken by the Health Experiences Research Group in the Department of PrimaryHealth Care Sciences at the University of Oxford. 40 carers were interviewed about their experiences of caring for someone at the end of life. Some were currently caring for a sick friend or relative; others had been bereaved
Resources for those who work with people at the end of life and their families.
The National End of Life Care Strategy (2008) aims to assist with the development of high quality end of life care that can enable people to die in a range of settings, including their own homes. In 2009, in line with these aims, the National End of Life Care Programme (NEoLCP) in partnership with Housing 21 (one of the leading providers of extra care housing) and with some funding from Skills for Care1, developed a learning resource pack and accompanying DVD for end of life care in extra care housing settings. Report published by the Centre for Housing Policy, University of York.
Film that illustrates the steps involved in supporting a person with dementia to die well, through the experience of Mairead Smart and her family. It is crucial to recognise when a person with dementia enters the final weeks and days of their life and to respond with support that avoids unnecessary interventions and reflects the wishes of the individual and their family.