end of life care

One chance to get it right: improving people's experience of care in the last few days and hours of life

Document that sets out the approach to caring for dying people that health and care organisations and staff caring for dying people in England should adopt in future.

Difficult conversations with dying people and their families

Terminally ill people and their families were placed at the heart of the development and design of the research in order to:

Ways and means

Research that highlights the following key messages:

At a glance 59: end of life care for people with dementia living in care homes

This At a glance briefing summarises the research briefing End of life care for people with dementia living in care homes (SCIE 2012). Research briefings provide a concise, narrative summary of the research knowledge on a particular topic and signpost routes to further information. This briefing was published by Social Care Institute for Excellence (SCIE) and it has been co-produced with the National End of Life Care programme.

SCIE research briefing 40: end of life care for people with dementia living in care homes

This research briefing is about the care provided in care homes to people with dementia in the period leading up to the end of their lives. It aims to provide an overview of a range of issues important to care home residents, carers and providers. Research briefing published by the Social Care Institute for Excellence (SCIE) in May 2012. Review date is May 2015.

Funding health and social services for older people: a qualitative study of care recipients in the last year of life

Study that explores the views of older adults who are receiving health and social care at the end of their lives, on how services should be funded, and describes their health-related expenditure.

Dementia and end of life care: implications for people with sensory loss

Report from a half-day seminar on 7 February 2012, organised by the Social Care Institute for Excellence (SCIE), ARUP and the Thomas Pocklington Trust.

Committed to carers: supporting carers of people at the end of life

Report based on qualitative research, funded by Marie Curie Cancer Care, undertaken by the Health Experiences Research Group in the Department of PrimaryHealth Care Sciences at the University of Oxford. 40 carers were interviewed about their experiences of caring for someone at the end of life. Some were currently caring for a sick friend or relative; others had been bereaved

Evaluation of learning resources for end of life care in extra care settings : executive summary

The National End of Life Care Strategy (2008) aims to assist with the development of high quality end of life care that can enable people to die in a range of settings, including their own homes. In 2009, in line with these aims, the National End of Life Care Programme (NEoLCP) in partnership with Housing 21 (one of the leading providers of extra care housing) and with some funding from Skills for Care1, developed a learning resource pack and accompanying DVD for end of life care in extra care housing settings. Report published by the Centre for Housing Policy, University of York.