The aim of the research was to explore the costs of short break services for disabled children and their families. The study also sought to understand the contracting and commissioning process, including the factors that inform decision making processes and the management of budgets.
The research was commissioned by Action for Children and carried out by the Centre for Child and Family Research, Loughborough University.
"Health and social care services should focus on the needs of the individual to promote their health and wellbeing, and in particular, to enable people to live healthier lives in their community. Key to this is that people’s experience of health and social care services and their impact is positive; that they are able to shape the care and support that they receive; and that people using services, whether health or social care, can expect a quality service regardless of where they live."
The Scottish Government recently released the 2014 data for the provision of respite in Local Authority areas across Scotland. The statistics are presented in "respite weeks provided or purchased by local authorities" and then further broken down into "overnight" and "daytime" respite for three age groups: 0-17, 18-64 and 65+. This paper from Shared Care Scotland provides a short summary of the data and comments on issues arising from analysis of this data. Links to the full Scottish Government data and analysis are also provided.
Dundee Carers Centre commissioned Animate to carry out research into the current and future provision of Short Breaks/Respite for adults in Dundee, on behalf of the Dundee Partnership. The main purpose of the research was to help local service planners improve Short Break provision in line with the overall principles of the Scottish Government’s policy intentions: protecting young carers, enabling self - care and working with adult carers as partners in care, by:
• improving planning of Short Break services
Report by the Muscular Dystrophy Campaign into the lack of age appropriate short breaks (respite care) provision for disabled young adults with Duchenne muscular dystrophy and other neuromuscular and long-term conditions.
Personal budgets are now a core part of social care and will be an increasingly significant part of the future of healthcare and education for many. We have moved on from their introduction in the Putting People First concordat in 2007 with an expectation that 30% of people would be using them by 2011 – to the Care Act requirement that all eligible people should hold one.
This research is from England carried out by In-Control to evidence the impact of personal budgets on those who use them and services.
The Time to Live strand is part of the Creative Breaks programme and awards grants directly to individual carers so that they can arrange and pay for the short break that suits them best. In 2011 the Time to Live strand was piloted with 12 organisations who offer support to carers based upon geographical boundaries. In 2012 the application was extended to include organisations with a national, condition specific focus. This evaluation examines the projects running from October 2012 through to September 2013.
In 2012 Natural England commissioned Dementia Adventure (a Community Interest Company which connects people living with dementia, with nature and a sense of adventure) to review the existing evidence of the benefits and barriers facing people living with dementia in accessing the natural environment and their local green space.
No one would argue that unpaid family carers should not be equal partners in care, as their care constitutes over 50% of all care provided in every local authority and NHS region of Scotland. Consistent and meaningful carer engagement must therefore be at the heart of all good health and social care policy. But a great gulf remains between good intentions and good practice. The Coalition of Carers in Scotland is pleased to o!er the carer engagement standards in this document as a bridge to help planning o"cers and commissioners of services move from good intentions to better practice.